I was diagnosed with MND in September 2008. Life expectancy is 3-5 years but half succumb to the disease within 14 months of being diagnosed. The disease slowly destroys muscles needed to walk, talk and eventually breathe. I'm still breathing.
Tuesday 7 June 2011
Ah, another activity packed day. Nurse came quite late. My PEG was quite smelly, it has been cleaned and re dressed. I feel ok so not too concerned. Ellie the chiropodist came to cut my very long toe nails and educated me in that nails only take 7% of the bodies calcium, so having long nails isn't depleting my level. We will soon see if it is still a problem as had another blood test today. Penny gave me a good talking to about not getting so worn out to the point of making me poorly. I have promised to manage my diary better. Hospice tomorrow, I now only do a half day as I get too tired being there for the full day. Belinda came this afternoon and sorted out clothes for tomorrow, a drink and a wee. Ellie the cat jumped on to my lap in the bathroom. My goodness that cat has put on some weight, Ellie phant or Ellie belly now.
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