I was diagnosed with MND in September 2008. Life expectancy is 3-5 years but half succumb to the disease within 14 months of being diagnosed. The disease slowly destroys muscles needed to walk, talk and eventually breathe. I'm still breathing.
Friday, 30 November 2012
Cheerful earful
Where do I start, everything is going wrong or breaking, microwave, light bulb, extension lead, alarm bell, washing machine, grill door, radiator leak, radiators cold, door wouldn't shut, and so much more. I have one mother of a mouth ulcer and a runny nose. Other than that I am absolutely fine. My mate sue doesn't have a blood clot in her other leg so that is good news. My mate sue b has been fab trying to make Everything ok again. Mum and dad came today and fixed the extention lead and emptied the drinks cabinet. Slowly but surely with everyone's help I am emptying the lounge ready for the builders. Joy came today my cns, clinical nurse specialist. If a bed is available I can go to hospice whilst the work is done, which in all honesty is a great relief, i can tell you as it will be noisy, dusty amd damp. Ellie is being an absolute delight at the moment. So you see I can be a cheerful earful in the face of adversity!
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