I was diagnosed with MND in September 2008. Life expectancy is 3-5 years but half succumb to the disease within 14 months of being diagnosed. The disease slowly destroys muscles needed to walk, talk and eventually breathe. I'm still breathing.
Thursday 17 May 2012
Update
Its official and there is an X-ray as evidence....I'm full of hot air. We are a little backed up In the drainage system which can prove to be really quite uncomfortable. Its all trial and error to get it back into sync again once we have cleared the original problem. I have cancelled my visit to flint house and will be having a quiet week at Grosvenor House instead. Buccuspam and a mereist sniff of oramorph helping lots today. Physio came, Becky, to help with moving and handling. Now we tried a slide sheet, it worked great I slid up the bed very successfully and then slid all the way back to where I was down the bed. So back to the think tank on that one. A little light relief on a very stressful day.
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