This is my virtual Christmas wishes to everyone. Thank you Andy, colin, Jane and chris for the beautiful flowers. I have a festive poinsettia. I decided against a tree because of a certain Ellie mental cat I am the proud owner of. Ellie will find salmon in her stocking.
Penny is suffering my many hours of Christmas music, from Annie Lennox to the brass bands and of course Boney M (thanks Lesley).
My peg is still good. It's been quite quiet because so many people are suffering with colds at the moment. Thank you for staying away and hope you all feel better soon.
I had to laugh, the BBC has an advert with david Jason et al all wearing loud Christmas jumpers. Penny asked why they were all wearing jumpers that weren't very nice to look at. I tried to explain the funny side of a Christmas pull over from a distant aunt Maud. It clearly loses something in the translation. Penny has a surprise tomorrow. Jill is coming over to teach penny to bake a Victoria sponge. That is going to smell so good. I wonder if I will be allowed to scrape the bowl?
I was diagnosed with MND in September 2008. Life expectancy is 3-5 years but half succumb to the disease within 14 months of being diagnosed. The disease slowly destroys muscles needed to walk, talk and eventually breathe. I'm still breathing.
Monday, 19 December 2011
Thursday, 15 December 2011
Rat on a rope
Or should I say a cat on a collar and lead. She went for walkies with Sue around the garden.
The window cleaner came and I gave a more conventional Christmas bonus, not sure what Penny gave, the young lad shimmied up his ladder and back down again. Penny was getting changed not expecting some one with a Santa hat to be at her bedroom window. Confessions of a window cleaner.
I went to the MNDA Christmas lunch, yesterday. The hospice Christmas party was also on the same day. I enjoyed my puddings, all three of them! Ice cream and brandy custard, yum merry Christmas. Sue and I were joined by Margaret who we used to see at the QE. she told me about the MNDA forum where you can share tips and experiences. But more impressive is that she confirmed the very important break through heidi the clinical nurse specialist had mentioned. A gene has been identified in a good number of people with MND. This is apparently very exciting and significant. Fingers crossed. Happy Christmas to everyone xx
The window cleaner came and I gave a more conventional Christmas bonus, not sure what Penny gave, the young lad shimmied up his ladder and back down again. Penny was getting changed not expecting some one with a Santa hat to be at her bedroom window. Confessions of a window cleaner.
I went to the MNDA Christmas lunch, yesterday. The hospice Christmas party was also on the same day. I enjoyed my puddings, all three of them! Ice cream and brandy custard, yum merry Christmas. Sue and I were joined by Margaret who we used to see at the QE. she told me about the MNDA forum where you can share tips and experiences. But more impressive is that she confirmed the very important break through heidi the clinical nurse specialist had mentioned. A gene has been identified in a good number of people with MND. This is apparently very exciting and significant. Fingers crossed. Happy Christmas to everyone xx
Monday, 12 December 2011
Houdini strikes again
Trev and Carole visited. Always a pleasure and brought a great nodding reindeer flower pot for outside, I love him, thank you.
Jo came to visit and Lesley brought round some shopping. Shopping list for Penny that included 25, yes 25 packets of instant noodles. It's probably best not to ask but its a new diet manufactured by penny, the instant noodle diet. I hope it works. I have to say it is considerably cheaper than other options ahe has tried.
I was frantic last night. Ellie had been refusing to go in despite the rain. It was now dark so ask Jo and Lesley to have a go. Now Ellie has tasted freedom she wants it all the more. The cage was open and out she darts and away under the decking. Now given she only has three legs she is mightily quick, being black she is near impossible to see. Still I have a high six foot fence all around the garden she can't possibly get out, next sighting was on the fence in next doors garden. Penny patiently sat in the rain and coaxed her back with cat nip treats. Ellie was soaked and muddy. Actually so was Jo, Lesley and Penny. That's it now the hutch is off limits to her. I need a rethink and it's looking a lot like walks around the garden in her harness.
Jo came to visit and Lesley brought round some shopping. Shopping list for Penny that included 25, yes 25 packets of instant noodles. It's probably best not to ask but its a new diet manufactured by penny, the instant noodle diet. I hope it works. I have to say it is considerably cheaper than other options ahe has tried.
I was frantic last night. Ellie had been refusing to go in despite the rain. It was now dark so ask Jo and Lesley to have a go. Now Ellie has tasted freedom she wants it all the more. The cage was open and out she darts and away under the decking. Now given she only has three legs she is mightily quick, being black she is near impossible to see. Still I have a high six foot fence all around the garden she can't possibly get out, next sighting was on the fence in next doors garden. Penny patiently sat in the rain and coaxed her back with cat nip treats. Ellie was soaked and muddy. Actually so was Jo, Lesley and Penny. That's it now the hutch is off limits to her. I need a rethink and it's looking a lot like walks around the garden in her harness.
Friday, 9 December 2011
Asking for help
Having been an independent lady probably one of the hardest challenges is acknowledging you need help and then asking for it.
I am very fortunate that I have friends who will help anytime if they can. So needing a couple of jobs doing I text my friend Lesley asking if she could pop in on her way home from work for a couple of quick jobs. No came back the text reply. I did chuckle, especially as penny thought this to be very non British as the British people will not say no even if that is what they mean. I replied to the text, ok no worries to get a second text to say, that should have read no problem. So I chuckled some more. Lesley duley turned up and did the jobs for me, thank you you are a star.
Christmas decorations up, all of which are out of a certain cats reach, and started to listen to the many hours of Christmas carols I have on the iPod.
Mum and dad didn't come today as mum has a nasty cold and no Susie and Millie tomorrow for the same reason.
I am very fortunate that I have friends who will help anytime if they can. So needing a couple of jobs doing I text my friend Lesley asking if she could pop in on her way home from work for a couple of quick jobs. No came back the text reply. I did chuckle, especially as penny thought this to be very non British as the British people will not say no even if that is what they mean. I replied to the text, ok no worries to get a second text to say, that should have read no problem. So I chuckled some more. Lesley duley turned up and did the jobs for me, thank you you are a star.
Christmas decorations up, all of which are out of a certain cats reach, and started to listen to the many hours of Christmas carols I have on the iPod.
Mum and dad didn't come today as mum has a nasty cold and no Susie and Millie tomorrow for the same reason.
Thursday, 8 December 2011
Happy birthday Sue
Yesterday was a hospice Wednesday. Ellie knows this because the electrical wheelchair is in use. Ellie wriggled out of Penny's arms just as I was leaving through the back door. Ellie then led a merry dance around the garden. Home was under the decking as she couldn't be caught under there, so quick flurry to the plants and back under the decking when anyone got close. This went on for quite some time. I had gone back indoors as it was too cold. Eventually Ellie had enough and ran to the back door and straight in. By now most of hospice day was over.
Last night penny made Sue a beautiful birthday dinner, starters, mains and pud all washed down with a bottle of champagne. Thank you Penny for making such a special day for Sue.
Last night penny made Sue a beautiful birthday dinner, starters, mains and pud all washed down with a bottle of champagne. Thank you Penny for making such a special day for Sue.
Sunday, 4 December 2011
Trump
Trump is a neighbours cat who comes and visits Ellie every day. It is so sweet watching them through the patio door or mesh of Ellie's hutch and run. Ellie even allowed Trump to have some of her biscuits the other day. They are both black cats but it's easy to tell them apart as Trump has his full compliment of legs.
Mum, dad aunty Linda and David coming over today. Paul is the Eucharistic minister and said he would be here at 12 noon and no sign of him half an hour later. So we may have a congregation this afternoon!
I'm loving my new gadget where I can mirror my iPad onto the tv, which saves having to look downwards. Very much a nice to have but great for catch up tv and reading my books. I'm such a geek. Last night Lesley asked about the iPad, i happily discussed what it could and couldnt do and some hour or so later she had definitely glazed over. I bet she never asks again. Bless her she did fetch some late night shopping for Penny and I.
Songs of praise and country file tonight, great.
Mum, dad aunty Linda and David coming over today. Paul is the Eucharistic minister and said he would be here at 12 noon and no sign of him half an hour later. So we may have a congregation this afternoon!
I'm loving my new gadget where I can mirror my iPad onto the tv, which saves having to look downwards. Very much a nice to have but great for catch up tv and reading my books. I'm such a geek. Last night Lesley asked about the iPad, i happily discussed what it could and couldnt do and some hour or so later she had definitely glazed over. I bet she never asks again. Bless her she did fetch some late night shopping for Penny and I.
Songs of praise and country file tonight, great.
Thursday, 1 December 2011
Advent
This morning I introduced Penny to the chocolate advent calendar, she wasn't impressed as she is trying to be good, so if you do pop round there is likely to be chocolate available. Josie came this morning and did lots of jobs off my list. Helped to get me up and had a test drive on the hoist. She did very well.
I've had a very frustrating day and not the geek I thought I was. I need a nineteen year old to set up my iPad to the tv. Knight in shining armour coming tonight.
Yesterday we had a curry tea in the shed, jill, sue, Lesley, Fi, linds, penny and me, all in the cosy shed. Can't say I fancied Jill's and Sue's whole fish much, complete with head.
Ellie has OCD, obsessive cat disorder as she shows herself to be quite mad at times.
I've had a very frustrating day and not the geek I thought I was. I need a nineteen year old to set up my iPad to the tv. Knight in shining armour coming tonight.
Yesterday we had a curry tea in the shed, jill, sue, Lesley, Fi, linds, penny and me, all in the cosy shed. Can't say I fancied Jill's and Sue's whole fish much, complete with head.
Ellie has OCD, obsessive cat disorder as she shows herself to be quite mad at times.
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