I was diagnosed with MND in September 2008. Life expectancy is 3-5 years but half succumb to the disease within 14 months of being diagnosed. The disease slowly destroys muscles needed to walk, talk and eventually breathe. I'm still breathing.
Monday 30 May 2011
Monday morning feeling
Oh dear both Penny and I overslept, but there again it is a wet Bank Holiday so a lie in is OK. Needed a bed change as all wet from a leaky hot water bottle. Luckily it had gone cold. Lesley popped in and we had a good natter. I am struggling to keep my eyes open. Edith and Belinda came this afternoon. I am so embarrassed, I must have nodded off again and before Belinda left. I hadn't said thank you and have a good trip. I have had better days but obviously needed the sleep. My temperature has been up a little and I am suspecting the PEG as the culprit as oozing quite a bit despite being dressed and thoroughly looked after. Belinda brought me a scarf she had knitted as I had been so cold. I had my gloves on again today but we are promised warmer weather. Night xx
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