Ellie has clearly cottoned on to the fact that the Thursday morning visit by Josie equals a walk on her harness outside. She gets unnecessarily excited as she loves her walks. Josie asks if the collar around her neck is tight enough, yes but not as tight as I would like it. She wanted a chocolate button at five thirty am! Ellie took Josie on a safari this morning, through the flower bed.
The man came from Hereford and fitted my shower chair with new bits. He left a very nasty smell in the toilet, thanks for sharing that with us and I hope he doesn't have to come again anytime soon.
Penny gone to town so edith babysitting. Jigsaw finished at the weekend and it was mightily difficult to do. Will keep for my mum and dad to see then start on a new one, a 1931 vintage car, that's the same age as edith strangely enough.
I was diagnosed with MND in September 2008. Life expectancy is 3-5 years but half succumb to the disease within 14 months of being diagnosed. The disease slowly destroys muscles needed to walk, talk and eventually breathe. I'm still breathing.
Thursday, 8 March 2012
Wednesday, 7 March 2012
Stop thief
Bloody cat...stole chicken that was defrosting in the sink, ate a whole raw drumstick. Penny's punishment, no porridge for Ellie today.
Urine sample being sent off to the lab as a feint trace of something or another showed on the dipstick. The nurse Liz was cool about it so no worries.
Sue is coming today. Bob the wheelchair bus passed his MOT with flying colours.
I feel a bit robbed. MND is not painful but nevertheless I have been subjected to shingles, mouth soreness, cystitis and lets not forget the many Peg infections, Oi give me a break!
Urine sample being sent off to the lab as a feint trace of something or another showed on the dipstick. The nurse Liz was cool about it so no worries.
Sue is coming today. Bob the wheelchair bus passed his MOT with flying colours.
I feel a bit robbed. MND is not painful but nevertheless I have been subjected to shingles, mouth soreness, cystitis and lets not forget the many Peg infections, Oi give me a break!
Tuesday, 6 March 2012
Compliment
District nurse came this morning and complimented me for a very neat bottom. That has to be down to Penny as she gets most of the bum jobs. Window cleaners came today so Penny hid, she has not been able to face them since THAT incident in her bedroom. It tickles me.
My mum knitted me a hot water bottle cover, very patriotic red, white and blue, I love it.
Final urine test done today, which I am sure will be ok.
My mum knitted me a hot water bottle cover, very patriotic red, white and blue, I love it.
Final urine test done today, which I am sure will be ok.
Saturday, 3 March 2012
Housework
Sue stopping this weekend to give penny a couple of days break. Sue has been spring cleaning and I have helped with an antibacterial wipe on anything in my reach. I have even swopped duvets to be ultra careful I don't get those bugs back.
It's a girlie day today,as after three weeks some maintenance is required. A quite day with a DVD later, I think.
mum and dad came yesterday. We were all meant to be going to Bedford tomorrow for two days but I had to cancel and probably a bit adventurous for me now.
It's a girlie day today,as after three weeks some maintenance is required. A quite day with a DVD later, I think.
mum and dad came yesterday. We were all meant to be going to Bedford tomorrow for two days but I had to cancel and probably a bit adventurous for me now.
Thursday, 1 March 2012
Hooray
Today is a good day.
Doctor Panton came yesterday and reassured us all that the antibiotics are doing their job and I have cleared the bugs. A cautionary test after the antibiotics have finished and that will be that. Thank you for all your support, I feel much better and relieved.
Beth's special assessment centre today and I'm like a cat on hot bricks. I have written an article for the Worcestershire MNDA newsletter about the iPad fund raising.
Doctor Panton came yesterday and reassured us all that the antibiotics are doing their job and I have cleared the bugs. A cautionary test after the antibiotics have finished and that will be that. Thank you for all your support, I feel much better and relieved.
Beth's special assessment centre today and I'm like a cat on hot bricks. I have written an article for the Worcestershire MNDA newsletter about the iPad fund raising.
Sunday, 26 February 2012
Thank you
Thank you for all your get well wishes and prayers. I think this antibiotic will be the one. I need to give up entomology and start collecting something else instead, coins, stamps, anything but bugs. Sorry to all those people I have had to put off coming. I have missed the visits and banter but it was the right thing to do.
Tuesday, 21 February 2012
Awaiting results
Thank you all for the kind emails. I would also like to thank the lady that creased up over my frilly knickers and brought the lighter side to my current predicament.
The nurse didn't hang about this morning, grabbed the sample and beat a hasty retreat. I had just emptied the contents of my stomach and the aroma wasn't good. I am starting to feel better and hope to be back to normal very soon.
The nurse didn't hang about this morning, grabbed the sample and beat a hasty retreat. I had just emptied the contents of my stomach and the aroma wasn't good. I am starting to feel better and hope to be back to normal very soon.
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